Whew...am I glad that is over. Now I can finally focus on Christmas.
Jake was an all star and overall the day went as smoothly as I would have hoped. Your prayers and thoughts were felt throughout the day. Thanks to all who left words of encouragement, they all meant so much to me and really helped calm my nerves.
In the days before the test I was really stressed out. Knowing the risks of general anesthesia for achondroplasia made it worse than it probably should've been. I have a print out of a list of all the anesthesia considerations/complications, summarizing an actual journal article. Have any of the other POLP parents ever read that summary before? Several times it mentions the "squashing of nerves" in the neck area! What the heck!!??? Not good to read the day before your child goes under for the very first time.
Other stress factors included:
* the 2.5 hour drive to LA and trying to beat the horrible traffic to be there at 7 AM
* not being able to feed Jakey anything 8 hours before the test (I could give him clear liquids 2 hours before, but they said "no" to the thickener he needs to avoid aspiration...so that was out)
* going alone!!!
* not knowing how Jakey would recover but having to be back at work the next day
So, I'm not just a drama queen, right? My feelings were valid, right? Did other parents bust out crying when they saw their precious little one fall asleep? Man, was it quick. At one moment he was looking up at me with those big blue eyes and the next (we're talking like 30 seconds), he was out.
So, I said your prayers were felt...and in such a real way.
First of all, my dad told me that he would go with me. I didn't ask him because I wanted to seem strong for both of my parents. I think I put on that mask for most people. Inside I'm really that little girl who needed her daddy more than she wanted to admit. He woke up at the butt crack of dawn (actually WAY before, 3:45 AM to be exact) to go with me.
David couldn't go because he's in the academy, which is basically boot camp. His first training officer wouldn't even let him carry his cell phone. That morning he asked another training officer and he told him "yes"!
It rained ( = poured) in San Diego all day Monday. Tuesday it was clear. Wednesday (today) it poured again. This is significant! Southern Californians don't drive in the rain. I'm telling you God was watching over us.
Jakey was a doll the drive up AND while we waited for over 2 hours before the MRI began. Can you imagine holding a 13 month old squirmer for 2 hours? All he wanted to do was play on the floor. No way I would let him on the hospital floor. Yikes! But he put up with me holding him for 2 hours and didn't complain about being hungry.
The procedure took 2.5 hours. After, they let us walk (but not touch) with Jakey to the recovery room. He was waking up along the way and that little whimper was like angles singing in my ears!
Once the flock of nurses in the PACU (post anesthesia care unit) did what they did, I was allowed to hold him and feed him a bottle. The poor little guy was like jello in my arms. He couldn't even hold his head up. He was a little fussy but a sweet angel once he had something to drink. He sat quietly in my arms for the next hour and a half while they continued to monitor him. The worst part was when they tore the heart monitor sensors off his chest and pulled out the IV.
The drive home was great. We got out early enough to just beat rush hour and Jakey slept the whole way.
I took him to my parents today (vs daycare) and they said he was his usual self. As if nothing had happened. I was a bit tired at work but luckily the rain kept most of my patients from coming in and I caught up on paperwork (and some gossip). I'm not kidding, southern Californians don't know what to do when it rains. We are afraid of it.
So that was our experience. Sorry this was so long. I know there are some people reading this who would've wanted details and to avoid repeating myself I wrote a book. It was also our first experience and I promise not to write so much next time.
1 month ago